Tuesday, September 9, 2014

Our Hands Can! Community Stories — August 2014: Food

What can your hands do with food? That was the Show Us Your Hands! Picture Project theme for August and it really hit a chord in the community. We received a lot of terrific submissions on our Facebook page. Our Advisory Council reviewed them all and selected their favorite to win the prize for August, a copy of Kim P. Miller’s terrific book Living with Juvenile Arthritis: A Parent’s Guide. See who won later in this post.

Here is a small selection of the August submissions:
Kelly gave us a two-for-one submission of her and her husband’s hands holding coffee cups. She said “Coffee is surely part of the food pyramid in my life! This is a picture of my husband and I, who both live with autoimmune arthritis, sharing a walk on our anniversary!” We agree completely, Kelly. Coffee is essential.

When Martine posted her submission, she also gave us a good tip. When writing the story to go along with her photo, she explained “I just finished preparing my yearly garlic paste - I grow my own organic garlic, and preoare a paste with olive oil. I freeze it in little quantities and voilĂ ! Ready for all culinary experiences, all year-round.” Great idea, Martine!

Kim posted a terrific shot of her hands peeling shrimp for special occasion. This was a very important step in making shrimp Alfredo, the dish her son had requested for his birthday dinner. Happy birthday to your son, Kim!

This month, we also wanted to show you the face (and hands) of one of our Advisory Council. Andrea Sarullo posted this creative collage of heard eating sushi, one of her favorite foods.

And the winner of the prize for August is AnnLouise! She said “This is my croquembouche - the first time I've been able to bake since being hit hard and diagnosed earlier this summer, just a week after my 20th birthday.” That’s is seriously impressive creation, AnnLouise! Congratulations on being this month’s winner! Send us an email at infoATshowusyourhamdsDOTcom to get your prize.

Do you want to go participate in the Picture Project? The theme for September is “work.” This isn’t just about paid work, but also anything you do as a volunteer or in your home (yardwork and housework counts!). Here’s what you do:
Take a photo of your hands at work, doing anything productive. Post it on the Show Us Your Hands! Facebook page and tag your post with #showusyourhands.

And that’s all! Submit as many photos as you’d like. At the end of the month, our Advisory Council will choose their favorite. The September prize is a signed copy of Danea Horn’s wonderful book Chronic Resilience: 10 Sanity-Saving Strategies for Women Coping with the Stress of Illness. Thank you for donating your book to the Picture Project, Danea!

We also should let you know that by submitting a photo, you give Show Us Your Hands! permission to use the photo and your name in our community programs, such as the monthly Our Hands Can! Community Stories.

To see the other entries in our Picture Project, hop on over to the Show Us Your Hands! Facebook page. While you’re there, why not submit a photo yourself?

Sunday, August 17, 2014


Recently my sisters and I accepted the "100 happy days" challenge of sharing one photo per day to Facebook that brought us joy.  The goal of the challenge is to take time during our busy days to focus on the moment we are in. Since my sisters live in different states than me, this was a great chance to receive a glimpse into their daily lives while sharing a bit of my own.

My first day started off with celebrating my son's 18th birthday.  My 100 days took me through my 26th wedding anniversary and my daughter's 16th birthday.  These were the big "happy" events, but most were smaller everyday things like getting a free Chipotle bowl, receiving hugs from everyone in my family before they took off for the day, time with my family on vacation, a bike ride, walking with Izzy, flowers I bought for myself, an evening at home alone, and many more.  Some days were a struggle.  During my "100 happy days" my mother-in-law was admitted to hospice care and died.  On some of these days I had to dig a little deeper to find something that made me happy.  The good news is that in my 100 days, there were numerous things that made me happy.  Some days I had to make a choice of what I wanted to share on Facebook as my "happy" thing because as the days went on, it was easier and easier to find things that made me happy.   I woke up thinking, "What do you think is going to make you happy today?"   Some days I had predicted exactly right and other days brought surprises like when my husband brought home a dark chocolate Ritter Sport for me because he thought I might need it.   Many of the things that made me happy with my husband, children, family, and friends were too personal to share and I chose to keep those happy events to myself, but found myself reflecting on them a little more than I usually would have.

My overall feeling after participating in "100 happy days" is that I am glad I did it. I received a lot of positive feedback from friends that they enjoyed seeing what made me happy and that it even helped them to focus more on the little things that happen daily in their lives.  Most satisfying is knowing that no matter what the day brings, there is always something that can bring a little joy into my life.  That is quite a comfort.  

Here's my last entry:  

 Day 100: It makes me happy that I have been given such wise and loving children who from an early age taught me that true happiness is opening yourself up to the amazement, joy, and contentment in everyday activities. When Alexander and Sophia were young, we had a nightly ritual of cuddling up in bed and sharing something we liked about our day. No matter how much we had spent on the day or how big the plans, the kids would answer with very simple things like, “I got to sit on Dad’s backseat (shoulders).” or “Mom shared her dessert with me.” They have given me a very special gift –the ability to find a smile every day, no matter what the day brings. 

It also makes me happy that I could share my #100happydays with you and that along the way I received such positive feedback in the comments section or in person.

Perhaps you aren't interested in publicly sharing what makes you happy and that's great, but I'd like to challenge you to do 15, 20, or even 30 days of things that make you happy.  I think you will be surprised at how your thoughts have an easier time moving away from the negative and focus more on the positive that is happening in our lives.   

Thursday, August 14, 2014

Our Hands Can! Community Stories — July 2014: Holidays/Vacation

Before we show you some of the wonderful entries in the Show Us Your Hands! July Picture Project, we’d like to tell you more about what it is we’re doing.

It is easy to forget all the amazing things we can do when living with inflammatory arthritis.  Photos are a great way of putting a picture into our mind of all the things we are accomplishing day to day. And that, in a nutshell, is what the Show Us Your Hands! Picture Project is all about!

Each month we come up with a new theme and ask the community to submit photos of what their hands can do related to the theme. This is one of the ways in which we fulfill our mission of uniting and inspiring the inflammatory arthritis community. But we can’t do it without you. Why not join the Picture Project?
The theme for August is “Food.” Here’s what you do:
1.   Take a photo of your hands chopping, grilling, cooking, eating. You get the idea. If you’re the parent of a child with JA, why not get your kids involved, as well?
2.  Post it on the Show Us Your Hands! Facebook page.
3.  Tag your post with #showusyourhands.

And that’s all! Submit as many photos as you’d like. At the end of the month, our Advisory Council will choose their favorite. The August prize is a copy of Kim P. Miller’s Living with Juvenile Arthritis: A Parent’s Guide. Thanks so much to Kim for the donation! We also should let you know that by submitting a photo, you give Show Us Your Hands! permission to use the photo and your name in our community programs, such as the monthly Our Hands Can! Community Stories.

July’s theme was Holidays/Vacation and we got some amazing entries. Here is a small selection:

Rebecca went to Disney and says she “made it through and had a blast!” It sure looks like both you and the little one on having a good time!

Karen posted this photo, saying “Not exactly "vacation", since the only reason I'm home is because I was let go from my job in April. But I've been using the time to create some jewelry.” We love that you’re making something beautiful out of a difficult time, Karen!

Sheri shared this shot, telling us that she is “spreading the word about Scleroderma awareness in Blarney, Ireland!” Way to go, Sheri!

Congratulations, Sheri. You’re the winner of the July Picture Project! You’ll get an e-book copy of Lene Andersen’s 7 Facets: A Meditation on Pain. Check your inbox for a message from us with details on how to claim your prize.

To see the other entries in our Picture Project, hop on over to the Show Us Your Hands! Facebook page. While you’re there, why not submit a photo yourself?

Monday, July 21, 2014

June 2014 Our Hands Can! Community Stories

Our Hands Can! Community Stories June 2014: Living Things

Show Us Your Hands! is launching an exciting new community program called the Picture Project. Every month, we ask people who live with inflammatory arthritis to take photos of their hands [involved in] doing something related to the month’s theme and post them on our Facebook page. The inaugural monthly Picture Project was this June on the theme of Living Things.

To celebrate this new program, we asked the Show Us Your Hands! Advisory Council to choose their favorite among the submissions. The winner will receive a signed copy of Your Life with Rheumatoid Arthritis: Tools for Managing Treatment, Side Effects and Pain by Lene Andersen, our Director of Community Outreach. We received a wonderful variety of submissions, some of which have been chosen to be included in this month’s Our Hands Can! Community Stories. Read on to the end of the post where we announce the winner.

And now we’d like like you to meet a few of the wonderful submissions on the theme of what your hands can do with Living Things.

Emily Fowler Eller gave us our very own “Daily Squee” when she submitted this photo of her hand holding one of her newborn English Angora rabbits. Around our international offices, there was a collective awwww. Ellen says that her bunnies are “sweet friends and produce wool which I spin into yarn and knit.”

Robyn Crocome shared a photo from her garden. She said “I am so thankful that I can still feed the winter garden birds under the glorious tree dahlia” We were thankful for her thoughtful perspective on gratitude and giving back to other living things.

Greida Quintero submitted this powerful photo of her hand with a stethoscope. She said that “today I can do my work to take care of my patients.” Thanks for the wonderful work you do, Greida. It’s good to know that there are people like you who have inflammatory arthritis and work in the healthcare system.

Angelica Jacobs shared a beautiful moment with her faithful companion. Angelica shared how important her dog is to her, saying “when I'm not well, she sleeps on me. Follows me everywhere and talks to me (dog talk).” Those of us who have pets completely understand what you mean, Angelica!

Thank you to everyone who submitted photos in our June Picture Project! And now…. The winner!

Congratulations to Greida Quintero! We’ll be in touch to arrange sending the book to you.

Do you want to help us unite and inspire the inflammatory arthritis community? Join the Picture Project! Post a photo of what your hands can do on the Show Us Your Hands! Facebook page. July’s theme is Holiday Fun. All submissions qualify to win a copy of 7 Facets: A Meditation on Pain by Lene Andersen.

What can your hands do for Holiday/Vacation Fun?

*Thanks to the Advisory Group for choosing the winner!

Friday, June 13, 2014

Growing Up

Within the last two months, we’ve had big changes in our home.   My oldest turned 18 and not only got his first official job but will also start college in the fall, and my baby turned 16 and is now the proud owner of an Illinois driver’s license.  All of these big changes have created a need in me to reflect on my role in my family’s life.

My background before kids was as a 5th grade elementary teacher.  I taught a class that was slightly over 80% low income and in need of English as a Second Language services.  I absolutely loved my job.  I worked with innovative teachers and principals who genuinely cared about the success of our students.  As a young teacher at the time, I learned from my students.  I observed what was and wasn’t working for them in the classroom and knew early on that when I finally had children of my own, I would provide some sort of alternative education.  I just never imaged it would be as alternative or good as it turned out.

By the time my oldest was two years old, we had moved 700 miles away from my hometown and family.   While this was definitely a difficult time for me, it was also a time for me to become dependent on my own beliefs as a parent.   I was already tandem/extended nursing both kids and we shared a family bed which seemed so out there at the time.  I began to think about my son going away to school in only a few short years.  I wasn’t ready for that.  I liked having him home with me.   I loved watching him explore his surroundings.   It was in those early years that I learned the most valuable lesson I have learned to date and it has guided me through most of my parenting/life experiences – follow your heart.   Sometimes I have let myself slide into what others felt was right, but my heart always protested until I finally listened.    My heart lead me to make decisions that were different from other families, but so very right for ours.  

I keep getting this overwhelming feeling of joy when I think about our journey together.   While I have worked part-time as an adult ESL teacher since my daughter was three, my kids have always either been with  my husband or me.   We have both been so fortunate to be a part of their lives.  I think about all the mornings we woke up and chose to stay in our pajamas all day, the days we got up and decided to explore the backyard, go swimming, make blanket tents, cook together, or snuggle up and reread favorite books.   I got to participate in all of that!

I am going to admit that being a mom to a teenage girl has been the hardest thing I have ever done.  It has challenged me to find new ways to remain calm, to set limits, to let go of limits, and to remember that I helped create a strong minded person and with that comes struggles.  The truth is some days I feel like I have failed as a mother .  I find that listening to my heart is a struggle because it often differs with what my daughters mind/heart is telling her.  Then out of the blue, my daughter comes home and asks me to hug her.   She occasionally wakes me up at night because she needs to talk.  We’ve had long talks sitting in Starbucks parking lot.  It’s with these situations that I quickly forget my insecurities of being a failure as a mom to a teenager and know I have done my job well.   She recently gave me a huge complement.   Her friends told her she has the best mom because I am not strict, but I am always there for her.  It’s true. I don’t believe in setting tons of rules.   I expect respect which might include texting me if coming home later than planned, but overall, I always go back to my original philosophy when I started unschooling, “Trust them.  They have triggers within themselves that will always do what is best for who they are.”   I always told my kids as they were growing up, “You know your body best.”   They do.  When a person learns to believe in what their own body is telling them, they learn to listen to their own needs.   It may seem like their choices are a mistake, but it may also be the exact learning experience they need to have.  My job is not to tell them what is right or wrong for their individual self, but to guide them to listen to their own voice and be a sounding board for them as they figure out what that voice is telling them. 

We have spent our lifetime together following a path that was right for our family.  It went against what most mainstream and even at times unschooling families were doing, but it always felt right to us.  The last few years I have watched my two children transition from unschoolers to school kids.   There were a few small bumps in the road, but overall, they have found where they belong.   They have both always been good at listening to their individual hearts and know their own bodies well, my greatest gift to them.

I think the reason I have been reflecting on my role as a mom is because I know the life we have known is changing and while it is exciting, it is also new and I’m figuring out my place in this new relationship.   I see less and less of both kids.  They still both need me, but when and how varies from day to day.    I am in the process of figuring out my new role as mom and as I always have done, want to excel at it.  I have been a lucky momma to have been a part of so many of my children’s life experiences and look forward to many more.  My heart has lead me well. 

Thursday, June 5, 2014

This is Me Today

The other day I looked in the mirror and felt frustrated, as I have for the last two years.  Twenty pounds of extra Cathy was spilling out of my pants and I wasn't happy.   In fact, I felt defeated.   It seems that no matter what I do these days, the weight is quite content where it is.    

I moved on with my day as one must do, but at some point my memory was jogged.   Years ago, I felt that same defeat with my joints.  No matter what I did, I couldn't get the pain to go away.   The pain seemed quite content to stay in my body.  

My journey with rheumatoid arthritis has taught me more lessons than I can count, but they have all been positive life changing lessons.  When I thought back to how I felt when the pain in my joints just wouldn't disappear, I remembered the steps I took to drag myself from the feeling of defeat.   I visualized myself doing the things I wanted to do but couldn't:  ride my bike, jump into a pool without an attack of Rayaund's, lots of hair again, hugging my family without pain, and waking up and jumping out of bed.   There are days now when I find myself amazed that all of the things I visualized myself doing are happening daily now. My rheumatoid arthritis is in a happy place.  We went for our first bike ride of the season two weeks ago and I didn't struggle one bit as we climbed hills and rode over nine miles.

That memory of where I once was with my rheumatoid arthritis motivated me to make some changes with my body weight.  I decided not to use visualization this time because visualizing myself 20 pounds lighter only seemed to focus on who I was in the past. Instead I created a mantra for myself, "This is me today.  Be proud of who you are and all you have accomplished." Wishing I was the weight of a person I no longer am doesn't serve me.

I can't say there has been a 100% change in how I look at myself in the mirror, but there definitely has been a change in the right direction.  I haven't given up on losing the weight, but the simple act of repeating the mantra as I look in the mirror has helped me to accept who I am today.  Today is all that is important. Tomorrow I will be a new person and need to accept that person, wherever and whoever she is.

When my daughter was young, she used to ask about the stretch marks on my stomach from pregnancy.  I chose to tell her they were trophies of what I had accomplished by bringing her and her brother into the world.  It is what I believe and when I see other women with pregnancy stretchmarks, I feel pride for them.  Moms are awesome.   With my new mantra guiding me, I am looking at the extra weight as my trophy for surviving all the stress that has come the last several years of working more hours, transitioning to being a mom to teens rather than children, long hours sitting in the car, periomenopause, and much more.  My weight is here for a reason, just as I believe my rheumatoid arthritis is a part of me for a reason.  It is my job to figure out what it needs from me before it can move on and I believe it will move on when the time is right.   For now, I am going to continue working on nourishing my body with healthy foods, thinking positive thoughts about myself and others, getting good sleep, exercising, and finally buying clothes that fit around the waist rather than expecting the weight to magically disappear. This is me today.   :)  

Monday, June 2, 2014

Show Us What Your Hands Can Do!

Show Us What Your Hands Can Do!

A Show Us Your Hands! Photo Campaign
Building hope, one hand at a time

Help Show Us Your Hands! inspire and unite the inflammatory arthritis community and qualify to win a copy of Your Life with Rheumatoid Arthritis: Tools for Managing Treatment, Side Effects and Pain by Lene Andersen!

We need your help! At Show Us Your Hands! we aim to inspire and unite the inflammatory arthritis community. In the hope of building a stronger community, we are asking that each one of you share photos of your personal successes as a way to motivate and encourage others.

How Can You help?

Each month Show Us Your Hands will present a new theme. Use this theme throughout the month to take photos of yourself either using or engaging in this theme (hands, body, etc) and post it to Facebook and Twitter.  Post as often as you’d like and encourage others to join you.

Tag Show Us Your Hands so we can see your post and hashtag #showusyourhands to share with everyone!

Our theme for the month of June is Living Things.

We’re also adding an extra exciting feature this month. Our Advisory Council will look at all the entries and choose one they think is the best. That person wins a signed copy of Your Life with Rheumatoid Arthritis: Tools for Managing Treatment, Side Effects and Pain by Lene Andersen, our Director of Community Outreach!

We look forward to seeing your posts! Don’t forget to tag Show Us Your Hands! to be considered to win.

Wednesday, May 14, 2014

Always Changing

It seems like my blog and I have become long lost friends. I often think about it and sometimes even visit it to write a new post, but nothing seems to transpire. So yesterday, when I checked email and saw that I made Healthline's Top Rheumatoid Arthritis Blogs, I was pleasantly surprised.   Thank you Healthline.

In my absence, my rheumatoid arthritis has been very good to me. I have had a few flares here and there, mostly in my hips, but overall it has remained very calm. Thank you RA!

It seems that just when my rheumatoid arthritis was ready for a little down time, life moved on to other hurdles.  Recently I have been dealing with some perimenopause issues.   With rheumatoid arthritis I felt the need to share everything I was going through.  Menopause has been different.  I often feel more private with a need to only share with a few close friends and family.   I have found it to be a frustrating time of dealing with stubborn weight, hot flashes, and a few other issues, but also have found that it has been a very reflective time. My oldest is finishing high school, just got his first job, and will be attending college next year. (Luckily still living at home.) My daughter will be a junior in high school next year. I have been married for 25 years. As my body is changing and entering a new phase of life, I have taken a lot of time looking back over my past. I am so proud of the decisions I made to stay home with my children and to give them an alternative education. I am glad that my husband I have worked through hard times together over the years and enjoyed tons of happy times together.  My children are true gifts to this world and my husband still seems to surprise me with all the goodness he has inside of him. I feel excited about all that is happening with my family and know that all will be good.

I feel like I'm at a good place in my life, even if I wish the old methods of weight loss still worked and my students didn't have to see a sweaty teacher first thing in the morning, but those things are minor in comparison to all that is good in my life.

*I'm not on my blog often, but you can find me more frequently on my Facebook account.  

Friday, February 21, 2014

Figuring Out Positive Psychology for Cateepoo

I recently listened to a podcast on "positive psychology".  This was a new concept to me, but it has been whirling around in my mind and forced me to take a good look at myself....again.

The last three years or so, my mind has felt a little out of whack.  I added to my work schedule and was stressed out for a while, so that seemed an easy answer to the problem. I reduced my stress and reorganized my schedule to fit my needs better, but things still didn't feel completely aligned. My take away from the positive psychology podcast was that I need to look at my past, especially the parts of my past that were successful and build on those times. In doing so, I had two revelations.  One, I have become a podcast addict.  There.  I said it.  It's true. With large amounts of time in the car, I have been filling every minute with constant noise rather than letting my mind have some quiet down time as I did in the past and really need. Two, I have been listening to what these podcast "experts" think I should eat and how I should live my life rather than listening to myself, the true expert on Cateepoo.

After figuring out what has changed for me, I had to ask myself, "Why?".  The majority of the podcasts I listen to are Paleo related. I started the Paleo diet almost four years ago because it fits well with how I feel about food and life in general. It highly recommends buying local, organic, and free range food which I have been doing more of for the last 10-11 years.  The diet/lifestyle promotes eating fresh whole foods - minus grains, legumes, and dairy, putting the focus on meat, vegetables, and fruits. Movement is encouraged, especially lifting weights. Since I tend to want to know all there is about the philosophies I believe in and have tons of time in the car, it makes sense that I started listening to a variety of Paleo podcasts.

I  believe in the philosophy of this lifestyle and hope to continue making it more of a part of my life.  In order to do so, I need to make some changes. To me, the Paleo lifestyle is all about simplifying your life and finding balance. (A little humorous since it seems like I have become less balanced.). So first, I need to reduce the number/amount of time I spend listening to podcasts.  There is an enormous amount of information out there as this movement grows and develops.   There are blogs, books, and podcasts in ever growing numbers.  I sometimes feel my brain is bombarded with information, especially as many people are making this their living and constantly promoting themselves. There is a lot of fantastic information out there, but there comes a point when it is too much to consume.  I realized this while listening to the podcast on positive psychology. I have to go back to the days when I got in my car after work, left the radio off, and just had time to decompress rather than right away taking in more information.

In addition to spending way too much time listening to podcasts,  I have been spending too much time taking the advice of all the Paleo pod-casters I listen to.  Sure, a lot of them have fantastic information, but not when it sacrifices me listening to myself. Calm minded Cateepoo of the past listened to her own advice.  I have been allowing the "experts" to dictate what type of food to eat (I enjoy a little rice a few days a week), sleep to get (I love sleep and get as much as I can, but with crazy schedules, my priority is seeing my family), and exercise to get rather than doing what comes best for me - listening to myself.  An example of this is that I had stopped doing some of my cardio workouts because the host on this same podcast repeats in every podcast that it isn't good for us. "Lift weights and sprint. Avoid cardio."  That is the message heard over and over.  I like lifting weights, but honestly I hate sprinting so I don't do it.  It isn't enjoyable to me and it hurts my knees.  Wanting to go back to what worked in the past,  I found some cardio type workouts similar to what I did in the past and instantly my mind felt clearer.  My energy levels increased.  I look forward to working out. I even look forward to moving more during the day. Research and case studies that are shared on these podcasts are great, but when it comes down to it, I know myself better than anyone else. I am the expert on Cateepoo. This is how I have lived my life as a homeschooling mother and how I have dealt with my rheumatoid arthritis.  It only makes sense to be the expert in all areas of my life.

Once again I want to let my mind have time to rest after work.  I want to take my morning walk without earbuds so that I can listen to the birds, the wind, and other outdoor noises again. I want my mind to be clear so that when my husband or children laugh or want to share something with me, I have the room in my mind to listen.  My mind has felt like it is overflowing with information.  It is time to slow it down and go back to listening to my internal voice rather than the voices of  ten different podcasters that feel they know what is best for me.

I like the idea of positive psychology.  It makes sense to build on what has made me successful.  I know that eating well, reducing my stress, exercising/general movement, quiet time alone and with family are what works for me.  My mind is doing a happy dance as it realizes it is once again listening to the one person who knows what is best for it- me!

Monday, February 17, 2014

Live Bold, Live Now with Lene Andersen

Lene Andersen, a good friend and fellow Show Us Your Hands Board member, shares her rheumatoid arthritis story at Live Bold, Live Now.

Lene is a true pioneer when it comes to rheumatoid arthritis.  She was diagnosed before there were meds that made huge changes in how people feel and live with rheumatoid arthritis.  She has spent years advocating for people with disabilities.

Besides learning more about Lene and her journey in this video book, I loved hearing from Lene's mom, sister, and boyfriend.   Lene's mother and sister very eloquently share their thoughts and feelings on Lene's rheumatoid arthritis diagnosis as a child.  I think we so often focus on our family not understanding how WE are dealing with our diagnosis and forget that they are also dealing with it. I loved how proud they both are of her and her wonderful accomplishments. My favorite part of the video book was at the end when Lene and her boyfriend are walking hand in hand.  So beautiful.

If you have not yet seen Lene Andersen's Live Bold, Live Now video book, please spend some time with it.